Article
Refining a Multifaceted Model of Perceived Utility of Genomic Sequencing Results.
Public health genomics - 1 Jan 2023
Duenas Devan M, Riddle Leslie, Guerra Claudia, Caruncho Mikaella, Lewis Hannah, Porter Kathryn M, Kraft Stephanie A, Anderson Katherine P, Biesecker Barbara, Gilmore Marian J, Zepp Jamilyn M, Leo Michael C, Wilfond Benjamin S, Joseph Galen
Abstract excerpt
INTRODUCTION: Research on the perceived utility of genomic sequencing has focused primarily on pediatric populations and on individuals and families with rare genetic diseases. Here, we evaluate how well a multifaceted perceived utility model developed with these populations applies to a diverse, adult population aged 18-49 at risk for hereditary cancer and propose new considerations for the model. METHODS:...
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