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Co-Creating the Experience of Consent for Newborn Genome Sequencing: The Generation Study

11 Oct 2024

Abstract excerpt

INTRODUCTION: The Generation Study (GS) aims to recruit 100,000 newborns in England to evaluate the utility and feasibility of using whole genome sequencing to screen for rare conditions that can be treated in early childhood; enable wider research to support further discovery in genomics and health; and explore the potential of storing an individual's genome over their lifetime. The GS incorporates complexities...

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PMID: 39396502
DOI: 10.1159/000541935

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