Article

Return of Participants' Incidental Genetic Research Findings: Experience from a Case-Control Study of Asthma in an American Indian Community

2023-01-19

Abstract excerpt

<h4>Purpose: </h4> The proper communication of clinically actionable findings to participants of genetic research entails important ethical considerations, but has been challenging for a variety of reasons. We document an instance of return of individual genetic results in the context of a very rural American Indian community, in hopes of providing insight to other investigators about potentially superior or infer...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: 5d2d2302-8c71-590d-8477-aa060cdf1a34
DOI: 10.21203/rs.3.rs-2485539/v1

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Return of Participants' Incidental Genetic Research Findings: Experience from a Case-Control Study of Asthma in an American Indian CommunityDOI 10.21203/rs.3.rs-2485539/v1Read

Return of genetic and genomic research findings: experience of a pediatric biorepositorySemantic proximity Read

At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.Semantic proximity Read

Introducing return of results in the Million Veteran Program: Design and pilot results of the MVP-ROAR Familial Hypercholesterolemia StudySemantic proximity Read

The Responsibility to Recontact Research Participants after Reinterpretation of Genetic and Genomic Research ResultsSemantic proximity Read

Attitudes of Canadian researchers toward the return to participants of incidental and targeted genomic findings obtained in a pediatric research settingSemantic proximity Read

Unlocking the Potential of Genetic Research in Pulmonary Arterial Hypertension: Insights from Clinicians, Researchers and Study TeamSemantic proximity Read

Return of Results in Genomic Research Using Large-Scale or Whole Genome Sequencing: Toward a New NormalSemantic proximity Read

Recommendations for ethical approaches to genotype-driven research recruitment.Semantic proximity Read

A Systematic Review of the Management of Incidental Finding in Genomics ResearchSemantic proximity Read

An Alaska Native community’s views on genetic research, testing, and return of results: Results from a public deliberationSemantic proximity Read

Approaches to informed consent for hypothesis-testing and hypothesis-generating clinical genomics research.Semantic proximity Read

Returning individual genomic results to population-based cohort study participants with BRCA1/2 pathogenic variants.Semantic proximity Read