At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.

doi:10.2215/CJN.09670819

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Article

At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.

Clinical journal of the American Society of Nephrology : CJASN - 7 Aug 2020

West Kathleen M, Blacksher Erika, Cavanaugh Kerri L, Fullerton Stephanie M, Umeukeje Ebele M, Young Bessie A, Burke Wylie

Abstract excerpt

Whether individual results of genetic research studies ought to be disclosed to study participants has been debated in recent decades. Previously, the prevailing expert view discouraged the return of individual research results to participants because of the potential lack of analytic validity, questionable clinical validity and medical actionability, and questions about whether it is the role of research to...

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Identifiers

PMID: 32041801
DOI: 10.2215/CJN.09670819
PMCID: PMC7409748

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 6 Sept 2026. Manifest publication-graph-cohort-2026-09-06.1.

Source receipt: pubmed, retrieved 6 Sept 2026.