Article

A questionnaire-based study to comprehensively assess the status quo of rare disease patients in China

2020-10-09

Abstract excerpt

<title>Abstract</title> <p><bold>Background</bold>: There are over 16.8 million rare disease patients in China, representing a large community that should not be neglected. To provide a basis for policy-makers, a comprehensive analysis of the status quo, unmet needs, difficulty caused by the rare disease is essential.<bold>Methods</bold>: Therefore, a questionnaire-based study of patients and care-givers was perf...

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Literature Corpus work: 5376b1fe-a8d5-5a88-8c22-71b62e28b05f
DOI: 10.21203/rs.3.rs-88844/v1

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