Article

A Questionnaire-based Study to Comprehensively Assess the Status Quo of Rare Disease Patients and Care-givers in China

2021-03-16

Abstract excerpt

<title>Abstract</title> <p><bold>Background</bold>: There are over 16.8 million rare disease patients in China, representing a large community that should not be neglected. To provide a basis for policy-makers to better understand the status quo of rare disease patients and care-givers in China and to devise some new policies, a comprehensive analysis of the status quo, unmet needs, difficulty caused by the rare...

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Literature Corpus work: 16b0989a-e9ac-533c-b7f8-92e2adc71751
DOI: 10.21203/rs.3.rs-304330/v1

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