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Measurement of Health-Related Quality of Life in Adult Patients with Rare disease: Based on the Chinese Value Set EQ-5D-5L

2024-05-23

Abstract excerpt

<title>Abstract</title> <p>Background Rare disease is a general term for a class of diseases with low incidence rate/prevalence. About 10% of the world's people are affected by rare disease, and China has about 20 million patients with rare disease. Patients with Rare disease usually face difficulties in diagnosis, no effective treatment, heavy medical burden and low quality of life. These difficulties may be mo...

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Literature Corpus work
dcde6ca1-b103-518b-98e5-f597375bf515
DOI
10.21203/rs.3.rs-3216967/v1
Open publication

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