Article

The Urgent Need to Empower Rare Disease Organizations in China: An Interview-Based Study

2020-08-17

Abstract excerpt

<title>Abstract</title> <p><bold>Background</bold>: Each rare disease affects a small number of population, and thus is neglected. However, a total of 7,000 rare diseases may affect 10% of the population. Due to the severity and lack of rare disease awareness, rare disease represents a huge challenge for the healthcare system. In Western countries, patient organizations have been playing an integral role in raisi...

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Literature Corpus work: be879940-e556-5026-b98c-ef17f9982705
DOI: 10.21203/rs.3.rs-57453/v1

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