Article

Balancing the Local and the Universal in Maintaining Ethical Access to a Genomics Biobank

2017-06-28

Abstract excerpt

<h4>Background</h4> Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasingly important topics in biomedical research. Decisions around data access are influenced by local arrangements for g...

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Literature Corpus work: 4104c9e7-73cc-58d2-94c4-94e4e7a507e4
DOI: 10.1101/157024

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