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Article

A Lens for Evaluating Genetic Information Governance Models: Balancing Equity, Efficiency and Sustainability.

Studies in health technology and informatics - 1 Jan 2017

Skorve Espen, Vassilakopoulou Polyxeni, Aanestad Margunn, Grünfeld Thomas

Abstract excerpt

This paper draws from the literature on collective action and the governance of the commons to address the governance of genetic data on variants of specific genes. Specifically, the data arrangements under study relate to the BRCA genes (BRCA1 and BRCA2) which are linked to breast and ovarian cancer. These data are stored in global genetic data repositories and accessed by researchers and clinicians, from both...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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PMID: 28423802

Genes

BRCA1
BRCA2

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