Article

Ethical considerations for Biobanking and Use of Genomics Data in Africa: A narrative review

2023-07-26

Abstract excerpt

<h4>Background: </h4> Biobanking and genomic research requires collection and storage of human tissue from study participants. From participants’ perspectives within the African context, this can be associated with fears and misgivings due to a myriad of factors including myths and mistrust of researchers. From the researchers angle ethical dilemmas may arise especially with consenting and sample reuse during stor...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: 8ca3ff16-a53f-543e-aeb8-7ec98ee601ae
DOI: 10.21203/rs.3.rs-3173909/v1

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Ethical considerations for Biobanking and Use of Genomics Data in Africa: A narrative reviewDOI 10.21203/rs.3.rs-3173909/v1Read

Model framework for governance of genomic research and biobanking in Africa – a content descriptionSemantic proximity Read

“It’s all about trust”: reflections of researchers on the complexity and controversy surrounding biobanking in South AfricaSemantic proximity Read

Model framework for governance of genomic research and biobanking in Africa – a content descriptionSemantic proximity Read

Recommendations for the development of Egyptian human biobanking ethical guidelinesSemantic proximity Read

Ethical and legal implications of whole genome and whole exome sequencing in African populationsSemantic proximity Read

Ethical issues in human genomics research in developing countriesSemantic proximity Read

Ethical issues in genomic research on the African continent: experiences and challenges to ethics review committeesSemantic proximity Read

Policy makers, regulators and researchers’ perspectives on genomics research and the capacity of the National Health Research Act of 2013 to regulate genomics research in ZambiaSemantic proximity Read

Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, UgandaSemantic proximity Read

Equity in international health research collaborations in Africa: Perceptions and expectations of African researchersSemantic proximity Read

The governance of genomic biobank research in Africa: reframing the regulatory tiltSemantic proximity Read

Ethical and practical issues to consider in the governance of genomic and human research data and data sharing in South Africa: a meeting reportSemantic proximity Read