Article

Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, Uganda

2020-09-01

Abstract excerpt

<h4>Background: </h4> In the last decade, Low- and Middle-Income Countries (LMICs) have set up Biobanks to collect human biological materials and associated data for genomic research and public health purposes. Biobanking gives rise to ethical challenges, such as informed consent, benefit sharing, confidentiality, ownership, commercialization and public participation which are harder to navigate in LMIC settings d...

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Literature Corpus work: eac16203-2578-5638-b427-206d5de698c6
DOI: 10.12688/wellcomeopenres.15442.2

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