Article

Participant attitudes toward returning individual results from CADASIL research

2026-08-25

Abstract excerpt

INTRODUCTION: Neurodegenerative research identifies biomarkers to confirm presence of disease and inform about risk for clinical symptoms. Expert guidance advises caution about disclosing individual research results (IRR), but participant interest remains high even when IRR may not inform individual prognosis. Existing studies of stakeholder attitudes emphasize Alzheimer's disease (AD) biomarkers. We explore parti...

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Literature Corpus work: 1db65bc8-6fa6-58a6-a264-ffdf0b9d1b8b
DOI: 10.64898/2026.08.21.26361045

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