Article

Navigating Change – UK specialised adult cystic fibrosis service delivery in the highly effective modulator therapy era

2026-04-14

Abstract excerpt

<title>Abstract</title> <p> Background Cystic Fibrosis (CF) is a life limiting inherited disease that primarily effects the respiratory and gastrointestinal systems. Patients with CF have complex healthcare needs requiring multidisciplinary specialist centre care, as this is associated with improved health outcomes. Recent introduction of highly effective modulator therapies has significantly improved the healt...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: 0bb61db6-60d9-5ba7-9f1e-26502eed27bf
DOI: 10.21203/rs.3.rs-9020027/v1

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Navigating Change – UK specialised adult cystic fibrosis service delivery in the highly effective modulator therapy eraDOI 10.21203/rs.3.rs-9020027/v1Read

Optimising the care and quality of life of people with cystic fibrosis: the influence of cystic fibrosis transmembrane conductance regulator modulators.Semantic proximity Read

“ <i>I gained a superpower… is this how normal people feel?</i> ”: A qualitative exploration of dietary perceptions and experiences amongst adults living with Cystic Fibrosis in the modulator eraSemantic proximity Read

Standards for the care of people with cystic fibrosis; establishing and maintaining health.Semantic proximity Read

Rethinking CF organization of care in the era of highly effective modulator: a nationwide research program HORIZONSemantic proximity Read

Exploring the Lived Experiences of Individuals with Cystic Fibrosis After the Implementation of Trikafta® for Treatment.Semantic proximity Read

Development of an intervention to increase adherence to nebuliser treatment in adults with Cystic Fibrosis: CFHealthHubSemantic proximity Read

Effects of modulator therapies on endocrine complications in adults with cystic fibrosis: a narrative review.Semantic proximity Read

Expectations about CFTR modulators among physicians from Italian Cystic fibrosis centers: a survey about the evolution of clinical practice paradigms for cystic fibrosisSemantic proximity Read

Updates in Nutrition Management of Cystic Fibrosis in the Highly Effective Modulator Era.Semantic proximity Read

Recent advances in the early treatment of cystic fibrosis: Bridging the gap to highly effective modulator therapy.Semantic proximity Read

Self-management support (SMS) in primary care practice: a qualitative focus group study of care professionals’ experiencesSemantic proximity Read

Patient perspectives following initiation of elexacaftor-tezacaftor-ivacaftor in people with cystic fibrosis and advanced lung disease.Semantic proximity Read