Article
Standards for the care of people with cystic fibrosis; establishing and maintaining health.
Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society - 1 Jan 2024
Southern Kevin W, Addy Charlotte, Bell Scott C, Bevan Amanda, Borawska Urzula, Brown Catherine, Burgel Pierre-Régis, Button Brenda, Castellani Carlo, Chansard Audrey, Chilvers Mark A, Davies Gwyneth, Davies Jane C, De Boeck Kris, Declercq Dimitri, Doumit Michael, Drevinek Pavel, Fajac Isabelle, Gartner Silvia, Georgiopoulos Anna M, Gursli Sandra, Gramegna Andrea, Hansen Carina Me, Hug Martin J, Lammertyn Elise, Landau Edwina Eddie C, Langley Ross, Mayer-Hamblett Nicole, Middleton Anna, Middleton Peter G, Mielus Monika, Morrison Lisa, Munck Anne, Plant Barry, Ploeger Maarten, Bertrand Dominique Pougheon, Pressler Tacjana, Quon Bradley S, Radtke Thomas, Saynor Zoe L, Shufer Ilan, Smyth Alan R, Smith Chris, van Koningsbruggen-Rietschel Silke
Abstract excerpt
This is the second in a series of four papers updating the European Cystic Fibrosis Society (ECFS) standards for the care of people with CF. This paper focuses on establishing and maintaining health. The guidance is produced using an evidence-based framework and with wide stakeholder engagement, including people from the CF community. Authors provided a narrative description of their topic and statements, which...
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