Article
The GAIN Registry - a New Prospective Study for Patients with Multi-organ Autoimmunity and Autoinflammation.
Journal of clinical immunology - 1 Aug 2023
Staus Paulina, Rusch Stephan, El-Helou Sabine, Müller Gabriele, Krausz Máté, Geisen Ulf, Caballero-Oteyza Andrés, Krüger Renate, Bakhtiar Shahrzad, Lee-Kirsch Min Ae, Fasshauer Maria, Baumann Ulrich, Hoyer Bimba Franziska, Farela Neves João, Borte Michael, Carrabba Maria, Hauck Fabian, Ehl Stephan, Bader Peter, von Bernuth Horst, Atschekzei Faranaz, Seppänen Mikko R J, Warnatz Klaus, Nieters Alexandra, Kindle Gerhard, Grimbacher Bodo
Abstract excerpt
Patient registries are a very important and essential tool for investigating rare diseases, as most physicians only see a limited number of cases during their career. Diseases of multi-organ autoimmunity and autoinflammation are especially challenging, as they are characterized by diverse clinical phenotypes and highly variable expressivity. The GAIN consortium (German multi-organ Auto Immunity Network) developed...
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