An international registry on autoinflammatory diseases: the Eurofever experience.

doi:10.1136/annrheumdis-2011-200549

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An international registry on autoinflammatory diseases: the Eurofever experience.

Annals of the rheumatic diseases - 1 Jul 2012

Toplak Natasa, Frenkel Joost, Ozen Seza, Lachmann Helen J, Woo Patricia, Koné-Paut Isabelle, De Benedetti Fabrizio, Neven Benedicte, Hofer Michael, Dolezalova Pavla, Kümmerle-Deschner Jasmin, Touitou Isabelle, Hentgen Veronique, Simon Anna, Girschick Herman, Rose Carlos, Wouters Carine, Vesely Richard, Arostegui Juan, Stojanov Silvia, Ozgodan Huri, Martini Alberto, Ruperto Nicolino, Gattorno Marco

Abstract excerpt

OBJECTIVE: To report on the demographic data from the first 18 months of enrollment to an international registry on autoinflammatory diseases in the context of the Eurofever project. METHODS: A web-based registry collecting baseline and clinical information on autoinflammatory diseases and related conditions is available in the member area of the PRINTO web-site. Anonymised data were collected with standardised...

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PMID: 22377804
DOI: 10.1136/annrheumdis-2011-200549

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