Article
Overcoming Barriers to Tumor Genomic Profiling through Direct-to-Patient Outreach.
Clinical cancer research : an official journal of the American Association for Cancer Research - 5 Jul 2023
Doe-Tetteh Seyram A, Camp Sabrina Y, Reales Dalicia, Crowdis Jett, Noronha Anne Marie, Wolff Bernadette, Alano Tina, Galle Jesse, Selcuklu S Duygu, Viale Agnes, Socci Nicholas D, Liu Ying L, Tew William P, Aghajanian Carol, Ladanyi Marc, He Meng Xiao, AlDubayan Saud H, Mazor Roei David, Shpilberg Ofer, Hershkovitz-Rokah Oshrat, Riancho Jose A, Hernandez Jose L, Gonzalez-Vela M Carmen, Buthorn Justin J, Wilson Manda, Webber Amy E, Yabe Mariko, Petrova-Drus Kseniya, Rosenblum Marc, Durham Benjamin H, Abdel-Wahab Omar, Berger Michael F, Donoghue Mark T A, Kung Andrew L, Glade Bender Julia, Shukla Neerav N, Funt Samuel A, Dogan Ahmet, Soslow Robert A, Al-Ahmadie Hikmat, Feldman Darren R, Van Allen Eliezer M, Diamond Eli L, Solit David B
Abstract excerpt
PURPOSE: To overcome barriers to genomic testing for patients with rare cancers, we initiated a program to offer free clinical tumor genomic testing worldwide to patients with select rare cancer subtypes. EXPERIMENTAL DESIGN: Patients were recruited through social media outreach and engagement with disease-specific advocacy groups, with a focus on patients with histiocytosis, germ cell tumors (GCT), and pediatric...
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