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Rethinking the ethical principles of genomic medicine services

18 Sept 2019

Abstract excerpt

Clinical genome and exome sequencing is currently used in only a small fraction of patients, yet large scale genomic initiatives are becoming more embedded in clinical services. This paper examines the ethical principles that should guide regulatory processes regarding consent and data sharing in this context. We argue that a genomic dataset administered by the health system carries substantial societal benefits,...

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PMID: 31534213
DOI: 10.1038/s41431-019-0507-1

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