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Clinical genomics, big data, and electronic medical records: reconciling patient rights with research when privacy and science collide

29 Nov 2016

Abstract excerpt

consent, attracts little scrutiny compared to biospecimen research, where concerns about genomic privacy prompted recent federal proposals to mandate consent. This paper explores an important consequence of the proliferation of electronic health records (EHRs) in this permissive atmosphere: with the advent of clinical gene sequencing, EHR-based secondary research poses genetic privacy risks akin to those of...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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PMID: 28852559
DOI: 10.1093/jlb/lsw061

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