Genomic Rights as Governance Rights: Rethinking Human Dignity, Sovereignty, and Justice After the Universal Declaration on the Human Genome and Human Rights

Abstract excerpt

The Universal Declaration on the Human Genome and Human Rights gave genomics an enduring human-rights grammar built around dignity, equality, privacy, and the symbolic idea that the human genome is the heritage of humanity [1]. That grammar remains indispensable, but it is no longer sufficient. Contemporary genomic practices are not confined to laboratory science or bedside counseling: they unfold within data-inte...

Topics

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• Biomedical Ethics and Regulation
• BRCA gene mutations in cancer
• CRISPR and Genetic Engineering
• Ethics in Clinical Research
• Genomics and Rare Diseases
• Race, Genetics, and Society

Identifiers and source

Literature Corpus work

1909463d-1179-5a86-aa69-d6c1a3da33b9

DOI

10.20944/preprints202604.2030.v1