Article
The ethics of contacting family members of a subject in a genetic research study to return results for an autosomal dominant syndrome.
The American journal of bioethics : AJOB - 1 Jan 2013
Taylor Holly A, Wilfond Benjamin S
Abstract excerpt
This case explores the ethical landscape around recontacting a subject's relatives to return genetic research results when the informed consent form signed by the original cohort of subjects is silent on whether investigators may share new information with the research subject's family. As a result of rapid advances in genetic technology, methods to identify genetic markers can mature during the life course of a...
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