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Article

Ethical issues in identifying and recruiting participants for familial genetic research.

American journal of medical genetics. Part A - 1 Nov 2004

Beskow Laura M, Botkin Jeffrey R, Daly Mary, Juengst Eric T, Lehmann Lisa Soleymani, Merz Jon F, Pentz Rebecca, Press Nancy A, Ross Lainie Friedman, Sugarman Jeremy, Susswein Lisa R, Terry Sharon F, Austin Melissa A, Burke Wylie

Abstract excerpt

Family-based research is essential to understanding the genetic and environmental etiology of human disease. The success of family-based research often depends on investigators' ability to identify, recruit, and achieve a high participation rate among eligible family members. However, recruitment of family members raises ethical concerns due to the tension between protecting participants' privacy and promoting...

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Methodology Data sources Editorial policy Privacy Delete account & data About Contact Helena Bioinformatics

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Identifiers

PMID: 15455364
DOI: 10.1002/ajmg.a.30234

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-08.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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