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Article

Parent perspectives on pediatric genetic research and implications for genotype-driven research recruitment.

Journal of empirical research on human research ethics : JERHRE - 1 Dec 2011

Tabor Holly K, Brazg Tracy, Crouch Julia, Namey Emily E, Fullerton Stephanie M, Beskow Laura M, Wilfond Benjamin S

Abstract excerpt

As genetic research is increasingly conducted in children, it is important to understand how parents make decisions about enrolling their children and what they think about receiving their children's genetic research results. We conducted semi-structured phone interviews with 23 parents of children enrolled in genetic studies of autism or diabetes. Qualitative thematic analysis focused on two important components...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Source

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Identifiers

PMID: 22228059
DOI: 10.1525/jer.2011.6.4.41
PMCID: PMC3426316

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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