Article
Informed consent for enrolling minors in genetic susceptibility research: a qualitative study of at-risk children's and parents' views about children's role in decision-making.
The Journal of adolescent health : official publication of the Society for Adolescent Medicine - 1 Apr 2003
Geller Gail, Tambor Ellen S, Bernhardt Barbara A, Fraser Gertrude, Wissow Lawrence S
Abstract excerpt
PURPOSE: To better understand the process by which families at increased risk of disease would decide to enroll their children in genetic susceptibility research in order to develop recommendations regarding the informed consent process by which at-risk children are enrolled in such research in the future [corrected]. METHODS: Parents and children (ages 10-17 years) from families at increased risk for heart...
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