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Article

Returning individual research results: development of a cancer genetics education and risk communication protocol.

Journal of empirical research on human research ethics : JERHRE - 1 Sept 2010

Roberts J Scott, Shalowitz David I, Christensen Kurt D, Everett Jessica N, Kim Scott Y H, Raskin Leon, Gruber Stephen B

Abstract excerpt

The obligations of researchers to disclose clinically and/or personally significant individual research results are highly debated, but few empirical studies have addressed this topic. We describe the development of a protocol for returning research results to participants at one site of a multicenter study of the genetic epidemiology of melanoma. Protocol development involved numerous challenges: (1) deciding...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 20831418
DOI: 10.1525/jer.2010.5.3.17
PMCID: PMC3159194

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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