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Article

Disclosing individual CDKN2A research results to melanoma survivors: interest, impact, and demands on researchers.

Cancer epidemiology, biomarkers & prevention : a publication of the American Association for Cancer Research, cosponsored by the American Society of Preventive Oncology - 1 Mar 2011

Christensen Kurt D, Roberts J Scott, Shalowitz David I, Everett Jessica N, Kim Scott Y H, Raskin Leon, Gruber Stephen B

Abstract excerpt

BACKGROUND: Whether to return individual research results from cancer genetics studies is widely debated, but little is known about how participants respond to results disclosure or about its time and cost burdens on investigators. METHODS: We recontacted participants at one site of a multicenter genetic epidemiologic study regarding their CDKN2A gene test results and implications for melanoma risk. Interested...

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Identifiers

PMID: 21307304
DOI: 10.1158/1055-9965.EPI-10-1045
PMCID: PMC3833711

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