Article
Verification of consumers' experiences and perceptions of genetic discrimination and its impact on utilization of genetic testing.
Genetics in medicine : official journal of the American College of Medical Genetics - 1 Mar 2009
Barlow-Stewart Kristine, Taylor Sandra D, Treloar Susan A, Stranger Mark, Otlowski Margaret
Abstract excerpt
PURPOSE: To undertake a systematic process of verification of consumer accounts of alleged genetic discrimination. METHODS: Verification of incidents reported in life insurance and other contexts that met the criteria of genetic discrimination, and the impact of fear of such treatment, was determined, with consent, through interview, document analysis and where appropriate, direct contact with the third party...
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