Article
"Should I Let Them Know I Have This?": Multifaceted Genetic Discrimination and Limited Awareness of Legal Protections among Individuals with Hereditary Cancer Syndromes.
Public health genomics - 1 Jan 2024
Gopalakrishnan Ridhi, Sam Jordan, Butkowsky Carly, Reble Emma, Clausen Marc, Rajeziesfahani Sepideh, Sparkes Brooklyn, Aguda Vernie, Aronson Melyssa, Bishop Derrick, Dawson Lesa, Eisen Andrea, Graham Tracy, Green Jane, Mighton Chloe, Pauling Julee, Pavao Claudia, Pechlivanoglou Petros, Remocker Catriona, Savas Sevtap, Sun Sophie, Tiano Teresa, Tilley Angelina, Schrader Kasmintan, Etchegary Holly, Bombard Yvonne
Abstract excerpt
INTRODUCTION: Hereditary cancer syndromes (HCS), such as hereditary breast and ovarian cancer syndrome (HBOC) and Lynch syndrome (LS), represent approximately 10% of all cancers. Along with medical burdens associated with the genetic risk of developing cancer, many individuals face stigma and discrimination. Genetic discrimination refers to negative treatment, unfair profiling, or harm based on genetic...
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