Article
Privacy, families, and human subject protections: some lessons from pedigree research.
The Journal of continuing education in the health professions - 1 Jan 2001
Cook-Deegan R M
Abstract excerpt
Studies that involve getting information from people about other people, including pedigree studies, create obligations to those other people. Defining them as "human subjects," however, does not solve the ethical problems and will, in some cases, make important lines of study impractical or even impossible. The more important task is to define what the ethical obligations are and how to ensure that they are...
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