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Article

Informed consent for genetic research.

Archives of pediatrics & adolescent medicine - 1 Jun 2004

Hamvas Aaron, Madden Katherine K, Nogee Lawrence M, Trusgnich Michelle A, Wegner Daniel J, Heins Hillary B, Cole F Sessions

Abstract excerpt

BACKGROUND: Rapid technological advances in genetic research and public concern about genetic discrimination have led to anticipatory safeguards in the informed consent process in the absence of legal examples of proven discrimination. Despite federal and state regulations to restrict access to personal health information, including genetic information, institutional review boards have required the addition of...

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Identifiers

PMID: 15184218
DOI: 10.1001/archpedi.158.6.551

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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