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Defining the Critical Components of Informed Consent for Genetic Testing

5 Dec 2021

Abstract excerpt

PURPOSE: Informed consent for genetic testing has historically been acquired during pretest genetic counseling, without specific guidance defining which core concepts are required. METHODS: The Clinical Genome Resource (ClinGen) Consent and Disclosure Recommendations Workgroup (CADRe) used an expert consensus process to identify the core concepts essential to consent for clinical genetic testing. A literature...

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PMID: 34945775
DOI: 10.3390/jpm11121304

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