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Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative study

2026-01-14

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<title>Abstract</title> <p> <bold>Purpose</bold> : This study aims to assess the content validity, face validity and comprehensiveness of the EQ-5D-5L, EQ-HWB, and ASCOT SCT4, for adults with rare genetic conditions; the EQ-5D-5L, EQ-HWB, and ASCOT-carer for carers of adults and children with rare genetic conditions; and the EQ-5D-Y-5L proxy-complete for carers of children with rare genetic conditions. <bold>M...

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Literature Corpus work
f22960a0-a181-5d21-9e03-7fe03b581c51
DOI
10.21203/rs.3.rs-8341102/v1
Open publication

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Content validity, face validity and comprehensiveness of generic quality-of-life measures in adults and children with rare genetic conditions and their carers: a think aloud qualitative studyDOI 10.21203/rs.3.rs-8341102/v1
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