Australian Health Professionals’ Understandings and Experiences of Broad Consent for the Future Research Use of Paediatric Genomic Data

Abstract excerpt

<title>Abstract</title> <p> <bold>Background</bold> : Broad consent is used to facilitate paediatric genomic research by enabling children’s genomic data to be stored, shared, re-analysed and used to generate future scientific and social value. However, it also raises ethical concerns about whether such consent can be considered to be appropriate and informed, and whether it provides sufficient protection for a...

Topics

Open a Topic to create a Post that cites this publication.

• Biomedical Ethics and Regulation
• BRCA gene mutations in cancer
• Cancer Genomics and Diagnostics
• Ethics and Legal Issues in Pediatric Healthcare
• Ethics in Clinical Research
• Genomics and Rare Diseases
• Prenatal Screening and Diagnostics
• Race, Genetics, and Society

Identifiers and source

Literature Corpus work

aeaca71f-284b-5af0-84d4-48097c5f8e8c

DOI

10.21203/rs.3.rs-10048544/v1