Article

How the prospect of a clinical trial impacts decision-making for predictive genetic testing in amyotrophic lateral sclerosis

2024-10-02

Abstract excerpt

<h4>Objective</h4> Genetic testing practices are rapidly evolving for people living with, or at-risk for, amyotrophic lateral sclerosis (ALS), due to emerging genotype-driven therapies. This study explored how individuals at-risk for familial ALS (fALS) perceive the opportunity to participate in a clinical trial, and to better understand how that may influence the decision-making process for predictive genetic tes...

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Literature Corpus work: ad931f35-36eb-57d9-b4ec-c5b454ace275
DOI: 10.1101/2024.09.30.24314632

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