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Article

How the prospect of a clinical trial impacts decision-making for predictive genetic testing in ALS.

Amyotrophic lateral sclerosis & frontotemporal degeneration - 1 May 2025

Fontaine Myriam, Horowitz Kayla, Anoja Nancy, Genge Angela, Salmon Kristiana

Abstract excerpt

Objective: Genetic testing practices are rapidly evolving for people living with, or at-risk for, amyotrophic lateral sclerosis (ALS), due to emerging genotype-driven therapies. This study explored how individuals at-risk for familial ALS (fALS) perceive the opportunity to participate in a clinical trial, and to better understand how that may influence the decision-making process for predictive genetic testing....

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PMID: 39511709
DOI: 10.1080/21678421.2024.2423718

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SOD1

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 8 Sept 2026.

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