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Identifying key supports and barriers during the transition from pediatric to adult healthcare for individuals living with spinal muscular atrophy: A qualitative study

2026-06-28

Abstract excerpt

<title>Abstract</title> <p>Individuals with genetic diagnoses require complex medical care throughout their lives. Much of this is hampered by lack of efficacious treatment or disjointed care teams. Spinal muscular atrophy type I-III (SMA) is one such example. Recently efficacious treatments have allowed more individuals to reach an age that requires transition from pediatric to adult healthcare teams (p/aHCT). A...

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Literature Corpus work
ab53623b-5b24-5de2-a2bd-220639b809eb
DOI
10.21203/rs.3.rs-10094065/v1
Open publication

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Identifying key supports and barriers during the transition from pediatric to adult healthcare for individuals living with spinal muscular atrophy: A qualitative studyDOI 10.21203/rs.3.rs-10094065/v1
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