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Destination unknown: Parents and healthcare professionals' perspectives on transition from paediatric to adult care in Down syndrome

5 Jun 2022

Abstract excerpt

BACKGROUND: Transitioning from paediatric medical care to adult care is a challenging process for children, parents and healthcare professionals. The aim of this study was to explore the experiences, concerns and needs of parents of children with Down syndrome and of professionals regarding this transition. METHOD: A qualitative study was performed using semi-structured interviews with 20 parents of children with...

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PMID: 35665576
DOI: 10.1111/jar.13015

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