Involving patients and publics in medical and health care research studies: an exploratory survey on participant recruiting and representativeness from the perspective of study authors

Abstract excerpt

Research on patient and public involvement so far concentrates on defining involvement, describing involvement methods, and analyzing involvement practice in various individual research disciplines. There is little empirical data on the process of and aims for selecting participants, and to what extend lay people involved in research can and should be representative of the population at large. To explore practices...

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• Ethics in Clinical Research
• Genomics and Rare Diseases
• Race, Genetics, and Society

Identifiers and source

Literature Corpus work

a87433c2-3877-5081-a248-e05e9f7b3bce

DOI

10.1101/410480