Article

Natural History Study of Recessive Dystrophic Epidermolysis Bullosa Wounds and Patient Reported Outcomes Using Mobile Application Home Photography

2024-03-26

Abstract excerpt

<title>Abstract</title> <p><italic><bold>Background:</bold></italic><italic> </italic>Recessive dystrophic epidermolysis bullosa (RDEB) is a rare, blistering genetic disease where wounding and wound pain are the most commonly reported problems by patients. The natural history of RDEB wounds has not been prospectively studied, thus limiting the design of clinical trial endpoints. <italic>Objective: </italic>To det...

Topics

Open a Topic to create a Post that cites this publication.

Identifiers and source

Literature Corpus work: 95651106-6966-53f8-bfa7-1f34ece7646f
DOI: 10.21203/rs.3.rs-3876810/v1

Open publication

Related research

Semantic proximity does not establish scientific evidence.

Click a neighbor to travelStep 1 · 12 closest

Natural History Study of Recessive Dystrophic Epidermolysis Bullosa Wounds and Patient Reported Outcomes Using Mobile Application Home PhotographyDOI 10.21203/rs.3.rs-3876810/v1Read

Pain in recessive dystrophic epidermolysis bullosa (RDEB): findings of the Prospective Epidermolysis Bullosa Longitudinal Evaluation Study (PEBLES)Semantic proximity Read

Prevalence, pathophysiology and management of itch in epidermolysis bullosa*Semantic proximity Read

Clinical characteristics associated with increased wound size in patients with recessive dystrophic epidermolysis bullosa.Semantic proximity Read

Long-term safety and efficacy of gene-corrected autologous keratinocyte grafts for recessive dystrophic epidermolysis bullosaSemantic proximity Read

Current topics in Epidermolysis bullosa: Pathophysiology and therapeutic challenges.Semantic proximity Read

Stairways to Advanced Therapies for Epidermolysis Bullosa.Semantic proximity Read

Treatment of Epidermolysis Bullosa and Future Directions: A ReviewSemantic proximity Read

Teledermatology: an Evidence Map of Systematic ReviewsSemantic proximity Read

Health Challenges in Patients with Epidermolysis bullosa: a cross-sectional studySemantic proximity Read

Current Treatment Landscape for Dystrophic Epidermolysis Bullosa: From Surgical Management to Emerging Gene Therapies and Novel Skin GraftsSemantic proximity Read

Practical considerations relevant to treatment with the gene therapy beremagene geperpavec-svdt for dystrophic epidermolysis bullosaSemantic proximity Read

Pathomechanisms of Altered Wound Healing in Recessive Dystrophic Epidermolysis Bullosa.Semantic proximity Read