Article

Design, Development and Deployment of a Web-Based Interoperable Registry for Inherited Retinal Dystrophies in Portugal – the IRD-PT

2020-10-14

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<title>Abstract</title> <p>BACKGROUND The development of multicenter patient registries promotes the generation of scientific knowledge by using real-world data. A country-wide, web-based registry for inherited retinal dystrophies (IRDs) empowers patients and community organizations, while supporting formal partnerships with investigators and stakeholders in the global aim to develop high-value, high-utility rese...

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Literature Corpus work: 6abf5c33-d4b0-55a4-ba94-d653ddb90de0
DOI: 10.21203/rs.3.rs-29574/v3

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