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Article

Victorian evolution of inherited retinal diseases natural history registry (VENTURE study): Rationale, methodology and initial participant characteristics.

Clinical & experimental ophthalmology - 1 Sept 2022

Britten-Jones Alexis Ceecee, O'Hare Fleur, Edwards Thomas L, Ayton Lauren N

Abstract excerpt

BACKGROUND: Emerging treatments are being developed for inherited retinal diseases, requiring a clear understanding of natural progression and a database of potential participants for clinical trials. This article describes the rationale, study design and methodology of the Victorian Evolution of inherited retinal diseases NaTUral history REgistry (VENTURE), including data from the first 150 participants...

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Identifiers

PMID: 35621151
DOI: 10.1111/ceo.14110
PMCID: PMC9796389

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PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-08.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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