Article
IMPACT (Immune Monitoring and Phenotype Assessment of Clinical Trajectory) for Patients With Inborn Errors of Immunity From the Primary Immune Deficiency Treatment Consortium (PIDTC).
The journal of allergy and clinical immunology. In practice - 1 Aug 2026
Arnold Danielle E, Eissa Hesham, Dunn Elizabeth, Cuvelier Geoffrey D E, Wright Nicola A M, Marsh Rebecca A, Parikh Suhag, Saldana Blachy Davila, Vander Lugt Mark T, Bacchetta Rosa, Satter Lisa Forbes, Chandrakasan Shanmuganathan, Kellner Erinn, Allenspach Eric J, Schmitt Erica G, Logan Brent, Burroughs Lauri, Cowan Morton J, Griffith Linda M, Notarangelo Luigi, Pai Sung-Yun, Pulsipher Michael A, Dvorak Christopher C, Haddad Elie, Puck Jennifer M, Torgerson Troy R, Leiding Jennifer W, Heimall Jennifer, Chan Alice Y
Abstract excerpt
BACKGROUND: Evaluating natural history and outcomes of rare inborn errors of immunity (IEIs) has been challenging due to the diverse disease manifestations and lack of standardized data. OBJECTIVE: To develop a set of standardized, quantitative, generalizable data collection modules to measure organ dysfunction in IEIs, modeled on the previously validated Common Terminology Criteria for Adverse Event system for...
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