"Irresponsible Not to Share Such Important Information": A Narrative of Responsibility That Underpins Familial Disclosure of Genetic Risk in Singapore.

Abstract excerpt

Patients diagnosed with familial hypercholesterolaemia (FH) are advised to disclose their diagnosis to at-risk relatives, as early knowledge of genetic risk allows relatives to manage their cholesterol levels. Debates in the bioethical literature regarding familial disclosure of genetic risk tend to revolve around rights: the right of the patient to autonomy and confidentiality, against the right of the family...

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• Share to Confidentiality
• Share to Disclosure
• Share to Family