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Article

Disclosing genetic information to family members without consent: Five Australian case studies.

European journal of medical genetics - 1 Nov 2020

Tiller Jane, Bilkey Gemma, Macintosh Rebecca, O'Sullivan Sarah, Groube Stephanie, Palover Marili, Pachter Nicholas, Rothstein Mark, Lacaze Paul, Otlowski Margaret

Abstract excerpt

Genetic risk information is relevant to individual patients and also their blood relatives. Health practitioners (HPs) routinely advise patients of the importance of sharing genetic information with family members, especially for clinically actionable conditions where prevention is possible. However, some patients refuse to share genetic results with at-risk relatives, and HPs must choose whether to use or...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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PMID: 32805446
DOI: 10.1016/j.ejmg.2020.104035

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