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Article

Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".

Journal of genetic counseling - 1 Dec 2024

Vuocolo Blake, Gutierrez Amanda M, Robinson Jill O, Recinos Alva M, Desrosiers Lauren R, Majumder Mary A, Bernini Juan Carlos, Gill Jonathan, Griffin Timothy, Tomlinson Gail E, Vallance Kelly, McGuire Amy L, Parsons D Williams, Plon Sharon E, Scollon Sarah

Abstract excerpt

Access to genomic sequencing (GS) and resulting recommendations have not been well described in pediatric oncology. GS results may provide a cancer predisposition syndrome (CPS) diagnosis that warrants screening and specialist visits beyond cancer treatment, including testing or surveillance for family members. The Texas KidsCanSeq (KCS) Study evaluated implementation of GS in a diverse pediatric oncology...

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Methodology Data sources Editorial policy Privacy About Contact Helena Bioinformatics

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Identifiers

PMID: 38225886
DOI: 10.1002/jgc4.1858
PMCID: PMC11247135

Provenance

PubMed metadata and Literature Corpus relationships. Corpus snapshot updated 7 Sept 2026. Manifest publication-graph-cohort-2026-09-07.1.

Source receipt: pubmed, retrieved 7 Sept 2026.

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