“I remember how I felt, but I don't remember the gene”: Families’ experiences of cancer‐related genetic testing in childhood

Abstract excerpt

BACKGROUND: Genetic testing in children for hereditary cancer predisposition syndromes (CPSs) involves unique psychosocial and family-systems considerations. This retrospective study explored the perspectives and emotional reactions of parents and young adults about cancer-related genetic counseling and testing offered to children in the family. METHODS: Families were eligible if they had considered genetic...

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