Article
Longitudinal Natural History Study of Children and Adults with Rare Solid Tumors: Initial Results for First 200 Participants.
Cancer research communications - 6 Dec 2023
Ahmed Shadin, Wedekind Mary Frances, Del Rivero Jaydira, Raygada Margarita, Lockridge Robin, Glod John W, Flowers Crystal, Thomas B J, Bernstein Donna B, Kapustina Oxana B, Jain Ashish, Miettinen Markku, Raffeld Mark, Xi Liqiang, Tyagi Manoj, Kim Jung, Aldape Kenneth, Malayeri Ashkan A, Kaplan Rosandra N, Allen Taryn, Vivelo Christina A, Sandler Abby B, Widemann Brigitte C, Reilly Karlyne M
Abstract excerpt
Understanding of tumor biology and identification of effective therapies is lacking for many rare tumors. My Pediatric and Adult Rare Tumor (MyPART) network was established to engage patients, advocates, and researchers and conduct a comprehensive longitudinal Natural History Study of Rare Solid Tumors. Through remote or in-person enrollment at the NIH Clinical Center, participants with rare solid tumors ≥4 weeks...
Read the complete abstract on PubMedTopics
Share this publication in a Topic to start or enrich a Post.