Article
Societal preferences for the return of incidental findings from clinical genomic sequencing: a discrete-choice experiment.
CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne - 7 Apr 2015
Regier Dean A, Peacock Stuart J, Pataky Reka, van der Hoek Kimberly, Jarvik Gail P, Hoch Jeffrey, Veenstra David
Abstract excerpt
BACKGROUND: An important challenge with the application of next-generation sequencing technology is the possibility of uncovering incidental genomic findings. A paucity of evidence on personal utility for incidental findings has hindered clinical guidelines. Our objective was to estimate personal utility for complex information derived from incidental genomic findings. METHODS: We used a discrete-choice...
Topics
- Adolescent
- Adult
- Aged
- Aged, 80 and over
- Canada
- Choice Behavior
- Cross-Sectional Studies
- Disclosure
- Female
- Genetic Predisposition to Disease