Article
The Concept of Personal Utility in Genomic Testing: Three Ethical Tensions
18 Mar 2025
Abstract excerpt
Health Technology Assessment (HTA) has traditionally focused on efficacy, safety, and cost-effectiveness. There has long been concern, however, that this is determined by the goals of healthcare providers/payers, not patients. As a result, HTA arguably fails to reflect the overall value of health technologies-including their "non-clinical" or "personal" utility to patients and their families. The use of genomic...
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